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Creating Moments of Joy for the Person with Alzheimer's or Dementia: A Journal for Caregivers
Jolene Brackey
Short Stories creating a positive perspective on coping.
buy on amazon barnes & nobleThe 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss
Nancy L. Mace,
Peter V. Rabins
A family guide to caring for people who have Alzheimer’s Disease, related dementias and memory loss.
buy on amazon barnes & nobleI'm Still Here: A New Philosophy of Alzheimer's Care
John Zeisel
endorsed by Daniel Goleman, author of ‘Emotional Intelligence’. A new philosophy of Alzheimer’s care…
1. Effectively manage the 4 A’s: agitation, apathy, anxiety and aggression
2. The 5 keys for meaningful communication
3. The 7 rules of relationship building
4. Reconnect through art, music, film, and poetry
Susie & Herman:
A Story of Love and Caregiving
L.B. Smith
The memoirs of a caregiver for family members with dementia
buy on amazon barnes & nobleStill Alice
Lisa Genova
Still Alice-is a compelling debut novel about a 50-year-old woman's sudden descent into early onset Alzheimer's disease.
buy on amazon barnes & nobleChicken Soup for the Soul: Living with Alzheimer's & Other Dementias: 101 Stories of Caregiving, Coping, and Compassion
Amy Newmark
Angela Timashenka Geiger
Caring for a loved one with Alzheimer’s or another form of dementia? You are not alone. With 101 encouraging and inspiring stories by others like you, this book is a source of support and encouragement throughout your caregiving journey.
buy on amazon barnes & nobleLooking for Lionel: How I Lost and Found My Mother Through Dementia
Sharon Snir
Looking For Lionel: Is a warm, insightful memoir about how dementia entered Sharon Snir's family and left them struggling with fear and sorrow. As Sharon shares her inspirational story, she invites you into her world of laughter and tears. Written for family and friends of those with the disease, it helps readers regain their courage and find the joys of relating in the here and now.
buy on amazon barnes & nobleRemembering the Music, Forgetting the Words: Travels with Mom in the Land of Dementia
Kate Whouley
Recounts the author’s relationship with her mother, both as a child admiring her mother, an innovative educator, and as an adult coping with caring for her Alzheimer’s- affected mother.
buy on amazon barnes & nobleThe Validation Breakthrough: Simple Techniques for Communicating with People with Alzheimer's and Other Dementias
Naomi Feil
Vicki de Klerk-Rubin
Super techniques for communicating with people with “Alzheimer’s-Type Dementia.”
buy on amazon barnes & nobleJan's Story: Love Lost to the Long Goodbye of Alzheimer's
Barry Petersen
Katie Couric
A full, rich story of two people--and thousands like them--for whom "forever" suddenly has an expiration date.
buy bookStrengthen Your Mind: Activities for People with Early Memory Loss Volume 1
Kristin Einberger
Janelle Sellick
Strengthen Your Mind contains dozens of activities and worksheets for persons with early memory loss across a broad range of interests to stimulate the mind, memories, and the senses.
buy on amazon barnes & nobleStrengthen Your Mind: Activities for People with Early Memory Loss Volume 2
Kristin Einberger
Janelle Sellick
Strengthen Your Mind contains dozens of activities and worksheets for persons with early memory loss across a broad range of interests to stimulate the mind, memories, and the senses.
buy on amazon barnes & nobleThe Memory Box
Mary Bahr
David Cunningham
When Gramps realizes he has Alzheimer's disease, he starts a memory box with his grandson, Zach, to keep memories of all the times they have shared.
buy nowStriped Shirts and Flowered Pants:
A Story about Alzheimer's Disease for Young Children
Barbara Schnurbush
Cary Pillo
With gentle reassurances and support from her family, Libby learns how the disease will ultimately affect her grandmother. She discovers ways to handle her feelings and worries, and she realizes that it is okay if she and her Nana wear striped shirts
with flowered pants.
Still My Grandma
Veronique Van Den Abeele
Claude K. Dubois
With charming, sensitive illustrations, this story gently introduces young readers to the realities of Alzheimer’s disease, and reminds them that love is more powerful than any illness can be.
buy on amazon barnes & nobleGreen Kitty
Alexandra Faer Bryan
The grandmother has recently been placed into assisted living due to her dementia and their bond grows stronger through the visits despite the illness. Helpful information about Alzheimer's disease is deftly woven into the work.
buy on amazon barnes & nobleWhat's Happening to Grandpa?
Maria Shriver
Sandra Speidel
Shriver has written a full-color, hardcover children's book about a grandparent with Alzheimer's disease. Shriver walks a girl through acceptance and a beginning understanding of her Grandpa's condition. This well-meaning book is clearly and lovingly written.
buy on amazon barnes & nobleToday's Caregiver Magazine
Today's Caregiver is a national magazine for caregivers that contains feature articles, interviews, book reviews, letters, poetry, advertisements and advertiser index. Specific articles are searchable from the search function.
subscribeTake Care Newsletter: National Family Caregivers Association (NFCA)
Take Care is a quarterly newsletter of the National Family Caregiver's Association with evidence based research and practical caregiver advice. A "question and answer" column and resource information is included.
subscribeTake Care Newsletter: National Family Caregivers Association (NFCA)
Take Care is a quarterly newsletter of the National Family Caregiver's Association with evidence based research and practical caregiver advice. A "question and answer" column and resource information is included.
The Alzheimer’s Association provides detailed information about research, caregiver resources and chapter information that services your area. They have a 24/7 care line for individuals to call who need immediate assistance. Registration is also available for e-newsletters and fund raising information.
24/7 Helpline: 1.800.272.3900
Check out informative publications from Alzheimer’s Disease Research, news letters with research updates, organizations that can provide assistance in many areas, from financial aid to senior housing, medical illustrations and videos, a list of helpful books, and memory games and exercises.
The mission of the Alzheimer’s Foundation of America (AFA) is “to provide optimal care and services to individuals confronting dementia, and to their caregivers and families – through member organizations dedicated to improving quality of life.
As the country’s largest grassroots Parkinson’s disease organization, the American Parkinson Disease Association (APDA) improves the lives people with Parkinson’s disease and their families from coast to coast with patient/caregiver support; education and positive lifestyle programs; awareness, social and fund raising events; and scientific research funding at all levels.
The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances.The Association’s purposes are charitable, educational, and scientific.
LBD Caregiver Link – 800.539.9767
Frontotemporal degeneration (FTD) is a disease process that results in progressive damage to the temporal and/or frontal lobes of the brain. It causes a group of brain disorders that share many clinical features. FTD is also commonly referred to as frontotemporal dementia, frontotemporal lobar degeneration (FTLD), or Picks disease.
Care Crossroads is an innovative, interactive “community of care” Web site that helps family caregivers meet other caregivers, learn about the brain disorder and connect “live” with experts. Among the site’s highly-versatile and unique features, AFA’s social workers are standing by 9 a.m. to 5 p.m. (Eastern) Monday to Friday to respond to questions and concerns on caregivers’ own communication terms: online via Skype and live chat, as well as e-mail and phone calls to the organization’s toll-free hot line at 866-232-8484. Caregivers can meet other caregivers via a discussion board, “I Care” video stories and creative contributions.
National Institute of Health – Free Publications
John’s Hopkins News Alerts
Take Care: National Family Caregivers Association (NFCA)
Take Care is a quarterly newsletter of the National Family Care giver’s Association with evidence based research and practical caregiver advice. A “question and answer” column and resource information is included. Sign up or read past issues
Today’s Caregiver Magazine / Caregiver Media Group
Today’s Caregiver is a national magazine for caregivers that contains feature articles, interviews, book reviews, letters, poetry, advertisements and advertiser index. Specific articles are search able from the search function.
Download issues in PDF or subscribe