suggested readings

Creating Moments of Joy for

the Person with Alzheimer's

or Dementia: A Journal for Caregivers

Jolene Brackey

Short Stories creating a positive perspective on coping.

The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss

Nancy L. Mace,

Peter V. Rabins

A family guide to caring for people who have Alzheimer’s Disease, related dementias and

memory loss.

I'm Still Here: A New Philosophy

of Alzheimer's Care

John Zeisel

endorsed by Daniel Goleman, author of ‘Emotional Intelligence’.  A new philosophy of Alzheimer’s care…

 

1. Effectively manage the 4 A’s:  agitation, apathy, anxiety and aggression

2. The 5 keys for meaningful communication

3. The 7 rules of relationship building

4. Reconnect through art, music, film, and poetry

 

Susie & Herman: A Story of Love and Caregiving

L.B. Smith

The memoirs of a caregiver for family members with dementia

Still Alice

Lisa Genova

Still Alice-is a compelling debut novel about a 50-

year-old woman's sudden descent into early onset Alzheimer's disease.

Chicken Soup for the Soul: Living with Alzheimer's & Other Dementias: 101 Stories of Caregiving, Coping, and Compassion

Amy Newmark

Angela Timashenka Geiger

Caring for a loved one with Alzheimer’s or another form of dementia? You are not alone. With 101 encouraging and inspiring stories by others like you, this book is a source of support and encouragement throughout your caregiving journey.

Looking for Lionel: How I Lost and Found My Mother Through Dementia

Sharon Snir

Looking For Lionel: Is a warm, insightful memoir

about how dementia entered Sharon Snir's family

and left them struggling with fear and sorrow. As Sharon shares her inspirational story, she invites you into her world of laughter and tears. Written for family and friends of those with the disease, it helps readers regain their courage and find the joys of relating in

the here and now.

Remembering the Music, Forgetting the Words: Travels with Mom in the Land of Dementia

Kate Whouley

Recounts the author’s relationship with her mother, both as a child admiring her mother, an innovative educator, and as an adult coping with caring for her Alzheimer’s-affected mother.

The Validation Breakthrough: Simple Techniques for Communicating with People with Alzheimer's and Other Dementias

Naomi Feil

Vicki de Klerk-Rubin

Super techniques for communicating with people with “Alzheimer’s-Type Dementia.”

Jan's Story: Love Lost to the

Long Goodbye of Alzheimer's

Barry Petersen

Katie Couric

A full, rich story of two people--and thousands like them--for whom "forever" suddenly has an expiration date.

buy book

Strengthen Your Mind: Activities for People with Early Memory Loss

Volume 1

Kristin Einberger

Janelle Sellick

Strengthen Your Mind contains dozens of activities and worksheets for persons with early memory loss across a broad range of interests to stimulate the mind, memories, and the senses.

Strengthen Your Mind: Activities for People with Early Memory Loss

Volume 2

Kristin Einberger

Janelle Sellick

Strengthen Your Mind contains dozens of activities and worksheets for persons with early memory loss across a broad range of interests to stimulate the mind, memories, and the senses.

Parkinson's Disease: A Guide for Patient and Family

Roger C. Duvoisin

Jacob Sage

The most popular and widely acclaimed guide for Parkinsonian individuals and their families is now in

its thoroughly updated Fifth Edition. In layperson's terms, Drs. Duvoisin and Sage explain the pathology, symptoms, and course of Parkinson's disease, discuss current drug therapies and surgical procedures, and examine the latest research on

the genetics of Parkinsonism.

My Journey into Alzheimer's Disease

Robert Davis

Betty Davis

A book of encouragement of how one man of faith faced the oncoming darkness of Alzheimer's disease. In a powerful story of courage and faith, Davis shows how God gives strength and grace.

The Memory Box

Mary Bahr

David Cunningham

When Gramps realizes he has Alzheimer's disease, he starts a memory box with his grandson, Zach, to keep memories of all the times they have shared.

buy book

Striped Shirts and Flowered Pants: A Story about Alzheimer's Disease for Young Children

Barbara Schnurbush

Cary Pillo

With gentle reassurances and support from her family, Libby learns how the disease will ultimately affect

her grandmother. She discovers ways to handle her feelings and worries, and she realizes that it is okay

if she and her Nana wear striped shirts with flowered pants.

Still My Grandma

Veronique Van Den Abeele

Claude K. Dubois

With charming, sensitive illustrations, this story

gently introduces young readers to the realities of Alzheimer’s disease, and reminds them that love is more powerful than any illness can be.

Green Kitty

Alexandra Faer Bryan

The grandmother has recently been placed into assisted living due to her dementia and their bond grows stronger through the visits despite the illness. Helpful information about Alzheimer's disease is

deftly woven into the work.

What's Happening to Grandpa?

Maria Shriver

Sandra Speidel

Shriver has written a full-color, hardcover children's book about a grandparent with Alzheimer's disease. Shriver walks a girl through acceptance and a beginning understanding of her Grandpa's condition. This well-meaning book is clearly and lovingly written.

Today's Caregiver Magazine

Today's Caregiver is a national magazine for caregivers that contains feature articles, interviews, book reviews, letters, poetry, advertisements and advertiser index. Specific articles are searchable

from the search function.

subscribe

Take Care Newsletter: National Family Caregivers Association (NFCA)

Take Care is a quarterly newsletter of the National Family Caregiver's Association with evidence based research and practical caregiver advice. A "question and answer" column and resource information is included.

subscribe

MEMORY SUPPORT

Alzheimer’s Association

The Alzheimer’s Association provides detailed information about research, caregiver

resources and chapter information that services your area. They have a 24/7 care

line for individuals to call who need immediate assistance. Registration is also

available for e-newsletters and fundraising information.

 

24/7 Helpline: 1.800.272.3900

Alzheimer’s Disease Resources

Check out informative publications from Alzheimer's Disease Research, newsletters

with research updates, organizations that can provide assistance in many areas,

from financial aid to senior housing, medical illustrations and videos, a list of helpful books, and memory games and exercises.

Alzheimer’s Foundation of America

The mission of the Alzheimer's Foundation of America (AFA) is "to provide optimal

care and services to individuals confronting dementia, and to their caregivers and families – through member organizations dedicated to improving quality of life.

American Parkinson’s Disease Association

As the country’s largest grassroots Parkinson’s disease organization, the American

Parkinson Disease Association (APDA) improves the lives people with Parkinson’s

disease and their families from coast to coast with patient/caregiver support;

education and positive lifestyle programs; awareness, social and fundraising

events; and scientific research funding at all levels.

Lewy Body Dementia Association

The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting

people with LBD, their families and caregivers and promoting scientific advances.

The Association's purposes are charitable, educational, and scientific.

 

LBD Caregiver Link – 800.539.9767

The Association for Frontotemporal degeneration (FTD)

Frontotemporal degeneration (FTD) is a disease process that results in progressive

damage to the temporal and/or frontal lobes of the brain. It causes a group of brain

disorders that share many clinical features. FTD is also commonly referred to as

frontotemporal dementia, frontotemporal lobar degeneration (FTLD), or Picks disease.

Care Crossroads

Care Crossroads is an innovative, interactive “community of care” Web site that

helps family caregivers meet other caregivers, learn about the brain disorder and

connect “live” with experts. Among the site’s highly-versatile and unique features,

AFA’s social workers are standing by 9 a.m. to 5 p.m. (Eastern) Monday to Friday

to respond to questions and concerns on caregivers’ own communication terms:

online via Skype and live chat, as well as e-mail and phone calls to the organization’s

toll-free hot line at 866-232-8484.  Caregivers can meet other caregivers via a

discussion board, “I Care” video stories and creative contributions.

Magazines/Journals:

Take Care: National Family Caregivers Association (NFCA)

Take Care is a quarterly newsletter of the National Family Caregiver's Association

with evidence based research and practical caregiver advice.  A "question and

answer" column and resource information is included. Sign up or read past issues

 

Today's Caregiver Magazine / Caregiver Media Group

Today's Caregiver is a national magazine for caregivers that contains feature

articles, interviews, book reviews, letters, poetry, advertisements and advertiser

index. Specific articles are searchable from the search function.

Download issues in PDF or subscribe

© Pelican Landing Assisted Living and Memory Care 2015