suggested readings
Creating Moments of Joy for
the Person with Alzheimer's
or Dementia: A Journal for Caregivers
Jolene Brackey
Short Stories creating a positive perspective on coping.
The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss
Nancy L. Mace,
Peter V. Rabins
A family guide to caring for people who have Alzheimer’s Disease, related dementias and
memory loss.
I'm Still Here: A New Philosophy
of Alzheimer's Care
John Zeisel
endorsed by Daniel Goleman, author of ‘Emotional Intelligence’. A new philosophy of Alzheimer’s care…
1. Effectively manage the 4 A’s: agitation, apathy, anxiety and aggression
2. The 5 keys for meaningful communication
3. The 7 rules of relationship building
4. Reconnect through art, music, film, and poetry
Susie & Herman: A Story of Love and Caregiving
L.B. Smith
The memoirs of a caregiver for family members with dementia
Still Alice
Lisa Genova
Still Alice-is a compelling debut novel about a 50-
year-old woman's sudden descent into early onset Alzheimer's disease.
Chicken Soup for the Soul: Living with Alzheimer's & Other Dementias: 101 Stories of Caregiving, Coping, and Compassion
Amy Newmark
Angela Timashenka Geiger
Caring for a loved one with Alzheimer’s or another form of dementia? You are not alone. With 101 encouraging and inspiring stories by others like you, this book is a source of support and encouragement throughout your caregiving journey.
Looking for Lionel: How I Lost and Found My Mother Through Dementia
Sharon Snir
Looking For Lionel: Is a warm, insightful memoir
about how dementia entered Sharon Snir's family
and left them struggling with fear and sorrow. As Sharon shares her inspirational story, she invites you into her world of laughter and tears. Written for family and friends of those with the disease, it helps readers regain their courage and find the joys of relating in
the here and now.
Remembering the Music, Forgetting the Words: Travels with Mom in the Land of Dementia
Kate Whouley
Recounts the author’s relationship with her mother, both as a child admiring her mother, an innovative educator, and as an adult coping with caring for her Alzheimer’s-affected mother.
The Validation Breakthrough: Simple Techniques for Communicating with People with Alzheimer's and Other Dementias
Naomi Feil
Vicki de Klerk-Rubin
Super techniques for communicating with people with “Alzheimer’s-Type Dementia.”
Jan's Story: Love Lost to the
Long Goodbye of Alzheimer's
Barry Petersen
Katie Couric
A full, rich story of two people--and thousands like them--for whom "forever" suddenly has an expiration date.
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Strengthen Your Mind: Activities for People with Early Memory Loss
Volume 1
Kristin Einberger
Janelle Sellick
Strengthen Your Mind contains dozens of activities and worksheets for persons with early memory loss across a broad range of interests to stimulate the mind, memories, and the senses.
Strengthen Your Mind: Activities for People with Early Memory Loss
Volume 2
Kristin Einberger
Janelle Sellick
Strengthen Your Mind contains dozens of activities and worksheets for persons with early memory loss across a broad range of interests to stimulate the mind, memories, and the senses.
Parkinson's Disease: A Guide for Patient and Family
Roger C. Duvoisin
Jacob Sage
The most popular and widely acclaimed guide for Parkinsonian individuals and their families is now in
its thoroughly updated Fifth Edition. In layperson's terms, Drs. Duvoisin and Sage explain the pathology, symptoms, and course of Parkinson's disease, discuss current drug therapies and surgical procedures, and examine the latest research on
the genetics of Parkinsonism.
My Journey into Alzheimer's Disease
Robert Davis
Betty Davis
A book of encouragement of how one man of faith faced the oncoming darkness of Alzheimer's disease. In a powerful story of courage and faith, Davis shows how God gives strength and grace.
The Memory Box
Mary Bahr
David Cunningham
When Gramps realizes he has Alzheimer's disease, he starts a memory box with his grandson, Zach, to keep memories of all the times they have shared.
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Striped Shirts and Flowered Pants: A Story about Alzheimer's Disease for Young Children
Barbara Schnurbush
Cary Pillo
With gentle reassurances and support from her family, Libby learns how the disease will ultimately affect
her grandmother. She discovers ways to handle her feelings and worries, and she realizes that it is okay
if she and her Nana wear striped shirts with flowered pants.
Still My Grandma
Veronique Van Den Abeele
Claude K. Dubois
With charming, sensitive illustrations, this story
gently introduces young readers to the realities of Alzheimer’s disease, and reminds them that love is more powerful than any illness can be.
Green Kitty
Alexandra Faer Bryan
The grandmother has recently been placed into assisted living due to her dementia and their bond grows stronger through the visits despite the illness. Helpful information about Alzheimer's disease is
deftly woven into the work.
What's Happening to Grandpa?
Maria Shriver
Sandra Speidel
Shriver has written a full-color, hardcover children's book about a grandparent with Alzheimer's disease. Shriver walks a girl through acceptance and a beginning understanding of her Grandpa's condition. This well-meaning book is clearly and lovingly written.
Today's Caregiver Magazine
Today's Caregiver is a national magazine for caregivers that contains feature articles, interviews, book reviews, letters, poetry, advertisements and advertiser index. Specific articles are searchable
from the search function.
subscribe
Take Care Newsletter: National Family Caregivers Association (NFCA)
Take Care is a quarterly newsletter of the National Family Caregiver's Association with evidence based research and practical caregiver advice. A "question and answer" column and resource information is included.
subscribe
MEMORY SUPPORT
Alzheimer’s Association
The Alzheimer’s Association provides detailed information about research, caregiver
resources and chapter information that services your area. They have a 24/7 care
line for individuals to call who need immediate assistance. Registration is also
available for e-newsletters and fundraising information.
24/7 Helpline: 1.800.272.3900
Alzheimer’s Disease Resources
Check out informative publications from Alzheimer's Disease Research, newsletters
with research updates, organizations that can provide assistance in many areas,
from financial aid to senior housing, medical illustrations and videos, a list of helpful books, and memory games and exercises.
Alzheimer’s Foundation of America
The mission of the Alzheimer's Foundation of America (AFA) is "to provide optimal
care and services to individuals confronting dementia, and to their caregivers and families – through member organizations dedicated to improving quality of life.
American Parkinson’s Disease Association
As the country’s largest grassroots Parkinson’s disease organization, the American
Parkinson Disease Association (APDA) improves the lives people with Parkinson’s
disease and their families from coast to coast with patient/caregiver support;
education and positive lifestyle programs; awareness, social and fundraising
events; and scientific research funding at all levels.
Lewy Body Dementia Association
The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting
people with LBD, their families and caregivers and promoting scientific advances.
The Association's purposes are charitable, educational, and scientific.
LBD Caregiver Link – 800.539.9767
The Association for Frontotemporal degeneration (FTD)
Frontotemporal degeneration (FTD) is a disease process that results in progressive
damage to the temporal and/or frontal lobes of the brain. It causes a group of brain
disorders that share many clinical features. FTD is also commonly referred to as
frontotemporal dementia, frontotemporal lobar degeneration (FTLD), or Picks disease.
Care Crossroads
Care Crossroads is an innovative, interactive “community of care” Web site that
helps family caregivers meet other caregivers, learn about the brain disorder and
connect “live” with experts. Among the site’s highly-versatile and unique features,
AFA’s social workers are standing by 9 a.m. to 5 p.m. (Eastern) Monday to Friday
to respond to questions and concerns on caregivers’ own communication terms:
online via Skype and live chat, as well as e-mail and phone calls to the organization’s
toll-free hot line at 866-232-8484. Caregivers can meet other caregivers via a
discussion board, “I Care” video stories and creative contributions.
Magazines/Journals:
Take Care: National Family Caregivers Association (NFCA)
Take Care is a quarterly newsletter of the National Family Caregiver's Association
with evidence based research and practical caregiver advice. A "question and
answer" column and resource information is included. Sign up or read past issues
Today's Caregiver Magazine / Caregiver Media Group
Today's Caregiver is a national magazine for caregivers that contains feature
articles, interviews, book reviews, letters, poetry, advertisements and advertiser
index. Specific articles are searchable from the search function.
